Opening Up The Wounds

I have been putting off this post for a VERY long time. And the original reason it started bothering me infuriates me even more but I really can’t get into that very much. So if it seems like some of this post is a little disconnected….well, it will be.

I have continued to ignore it but I think I’m just gonna feel better if I just say it and get it out of my head so I can move on. Who knows – I may type it all and end up not even posting it. A lot of people will be happy about that one.

About 18 months ago – after 3 years of being on Facebook – I suddenly disappeared. I was gone for a year. If you know anything about me at all you know that I am a transparent person. I deal with invisible illnesses but I feel my ministry is to bring them to the light to provide support and information for education. I live with Chronic Depression and Fibromyalgia. Those conditions may be easy for some people to hide but they aren’t for everyone. That comes into play in the reason for a lot of what I share in the realm of social media. Am I TOO open? Maybe for some people. Should that be MY problem? NO! I am ME! If you don’t like what I do or say – that is not my problem. It really doesn’t have to be ANYONE’S problem. A better explanation is that it’s probably just none of your business if it bothers you. I don’t make your business MY business so please grant me the same courtesy.

There are people in my life who have personalities completely different than mine who would prefer I wasn’t so transparent but they have graciously not expected me to abide according to their personality. I really can’t explain how much I appreciate that. I am a stay at home mom. I started out being a SAHM because it was the right thing for our family. However, since becoming ill, it has become a necessity because of my medical problems. So the online world has become, for the most part, my only contact or influence with the outside world. It has not been an easy transition. But I have now settled into a routine with it. I have this blog (which is a place I can, for the most part, be open and honest). I have Twitter. I HAD Facebook. That’s when the problem began.

Someone stepped up and voiced to those around me that THEY thought I was TOO OPEN on Facebook. This person (who has NEVER had a FB) told me, to my face, that they have looked at my Facebook and “it seems to all be all about you”. Honestly, my blood pressure went through the roof, my chin hit the floor and I was speechless (for a few seconds). EXCUSE ME? THAT’S WHAT FACEBOOK IS!!!!! It’s MY profile with MY information with MY thoughts with MY likes/dislikes. I’m not sure where this person, who had never had a FB got off telling ME how to run my FB profile! And 18 months later I, honestly, still don’t get it. I was infuriated. I don’t think I have ever been madder in my life. And the pace of my heartbeat right now tells me that it still really makes me mad. So, to keep the peace, I deactivated my account. Some of you may know when that happened and I disappeared.

I took a year to rethink the entire thing. I refocused some of my priorities. I spent some time away from social media. It was hard in the beginning. Then I began feeling like it was time to go back. I really missed the contact I had with people thru my accounts. I missed the ministry I had. I realized I needed that outlet in my walk thru my illness and the seclusion it brings. So, I stripped down my friends list to a group of people I knew I could trust to not judge me. In actuality if you search for me you won’t even be able to find me. I have certain accounts blocked from spying eyes who look for opportunities to find fault.. I find myself thinking twice before saying things, which is probably a good idea. I have just maintained more control over those who I let into my circle. I do confirm some people who send me friend requests. However, 90% of the people who send me a request I do not confirm. It may not be because of them personally but because of who I might find myself opened up to by “being their friend” on FB.

So I suppose that person did me a favor in a round about way. And I suppose I still have a lot of anger toward them – which I need to deal with. My relationship with them will never be what it was before. But I think this confrontation did teach me to be even less judgmental than I was before. I’ve never thought of myself as being a judgmental person because I don’t like to be judged. I’ve become more sensitive to it in other people – especially those around me. I snap my mouth shut a lot more. And believe it or not I am not easily offended. I kind of think this situation was an exception to that because I believe it was MEANT to be offensive. I must say I find myself even more guarded about what I say and share. I suppose that’s not a bad thing. I’m struggling with finding the balance between being transparent and over sharing. I’ve learned a number of lessons thru this experience. I know some people have wondered about why I’ve not friended them or let them in. Who knows – I may in time. But right now I’m a little tentative. And I’m still very raw. My spirit is bruised. My heart is wounded but healing over.

Well, thank you for reading if you made it this far. I expect some  hand slapping in the comments. But I hope you’ll understand if your comment doesn’t get approved. Sometimes a person just needs to protect themselves. Thank you for your patience with me.

The Spoon Bouquet

After I wrote about the Spoon Theory last week I got to got to thinking about how I can best get my family to understand the theory – therefore, better understand me.  I had in mind to get an inexpensive vase and maybe some old spoons from goodwill and make a spoon bouquet on the table each day.  I thought I could restock each morning and readjust the number of spoons throughout the day so that everyone can SEE just how things are going inside my skin.

Saturday Ron was going out to the store and asked if I needed anything.  I told him about my idea, which he thought was brilliant, of course!  He said he would take care of it for me.  Continue reading

Spoons Are The Most Important Utensil In The Silverware Drawer

If you follow me on Twitter you may have noticed me using the term/hashtag #spoonie.  And if you DON’T follow me….Uhhhhhhhhh WHY NOT?!  There’s no excuse for that!  Click the Twitter link in the first sentence and get yourself to Twitter ASAP and click “Follow” under my picture!  Go ahead!  I’ll wait……..tick tock tick tock tick tock……..THERE! Now we can get on with business!  GEEZ!

I have made some really terrific friends on Twitter.  Some I already knew and some are new to me.  A large percentage of my friends/followers are those who suffer with an Invisible Illness like I do.  An Invisible Illness is a chronic condition that is….uhhhhh…well, invisible!  If you walked past me in the mall you would not know that I am sick.  There are no outward signs that I have the chronic illness of Fibromyalgia, Depression, IBS, Restless Leg Syndrome, arthritis or the pain from a bulging disc.  I look perfectly normal (no smart comments from the peanut gallery are necessary, thank you very much)!  Continue reading

Thursday Thirteen – 13 Things I Have Learned and Continue to Learn from My Chronic Illness

13 Things I Have Learned and Continue to Learn From My Chronic Illnesses.

1.  To depend more on God
2.  To be more compassionate to others
3.  To let others help me
4.  That it’s OK to ask other for help
5.  To appreciate each day that I have
6.  How to research more about medical matters to improve my life
7.  To pray more for others
8.  Not to be so judgmental of others
9.  To give others the benefit of the doubt
10. To treat others the way I want to be treated
11.  That I can only do what I can do
12.  That God can still use me even when I feel unuseable
13.  To appreciate my family more

Bonus:
14.  To be more positive and not focus on the negative as it only makes me feel worse

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